Wednesday, August 1, 2018


Hair loss actually hurts, but the hats have helped a bit. We met with infectious disease again and even if the PCR test for CMV comes back with low levels they'll still want to observe her on oral anti-viral (valganciclovir) for a day before considering release. They are trying to set up an appointment in Baltimore with the infectious disease for next week, but scheduling can be difficult. #staceyupdate

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